Never underestimate government’s ability to mess up the best of intentions and something that makes sense to everybody but the body politic.  This is part of a story as posted on The National  Marrow Donor Program’s website:
Sergeant Randy Yamanaka of the Seattle Police Department turned up as a bone marrow match for a 1-year-old boy with leukemia.  Given his serving nature as a cop, he wanted to do it.  When he asked for paid time off, the city’s ethics commission said no.  Say what?
Right-click here to download pictures. To help protect your privacy, Outlook prevented automatic download of this picture from the Internet. Randy Yamanaka and Luke
Randy Yamanaka with
his recipient Luke
Skipping a few steps, Randy wrote to then-governor Gary Locke.  Governor Locke supported Sgt. Yamanaka.  The story leaked to the media and government found itself the target of anger and ridicule, as it should have been.  Common sense prevailed with the Seattle City Council passing an ordinance allowing city employees paid time off for organ and marrow donation.  Randy donated, was paid for his time off, saved little Luke’s life,  and everyone is happy.  Is that not the most darling picture to the left you’ve ever seen?
A few years ago when I was getting ready to go to transplant for a 16-year-old recipient, I faced a similar dilemma.  I told my boss I needed a few days off for surgery and recovery.  “Can you ask them if you can do it another time?” he asked.  “This is like the worst time for us for something like this.  We’re in ratings.”
Short of being very, very sick, it’s sort of understood that you don’t call in sick during ratings periods.
“No I don’t think so,”  I told him flabbergasted.  “He’s going to die if we don’t move fast.  He’s really sick and time is of the essense.”
With that the boss relented, realizing  how ridiculous it was to briefly protest my request.  I didn’t get the same happy result of my donation as Sgt. Yamanaka, but we gave my recipient one last chance to live.   It all goes to show that common sense is not always so common.  When someone is on a mission to further humanity and save a life, make the path easier on everyone.  That’s what the voice of reason talking. 
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Matt Szczur, Villanova Wide Receiver

Matt Szczur, Villanova Wide Receiver

Sometimes it’s best to just let others tell their story in their own words.  Here’s the set up.  Villanova University Wide Receiver Matt Szczur, a South Jersey native, got a call that he was a bone marrow match for a one-year-old girl with leukemia.  He will go to transplant for the little girl right around Christmas.  Watch the joy in his face.  This is what I’ve been telling people about for years and wrote about in The Marrow in Me–the impact of getting that magical phone call.   My pal and colleague Ron Burke of Comcast Sportsnet Philadelphia picks it up from here:
Andy Talley, Villanova Head Football Coach

Andy Talley, Villanova Head Football Coach

Now here’s the back end of the story.  Last spring I had breakfast with Villanova Football Coach Andy Talley at Minellas Diner in Wayne, PA;  just down the street from the University.  As he picked through his western omelette and I spread cream cheese on my toasted bagel I asked him, “Coach why bone marrow?  Is there a family connection to leukemia or blood cancer?”

“No, I was just watching TV late one night years ago and I saw this story about the need for bone marrow donors and I thought, hey I can do that.  I have 100 players I can register,” he said.

So what started in 1993 with Talley’s 100 or so players and friends has grown into a revolution.  With the National Marrow Donor Program’s help Coach Talley has started the Get in the Game and Save a Life Program which has registered more than 11,500 people.  Twenty six other college football programs across America are copying the Coach’s plan.

“You know Coach this’ll be your legacy,” I told him as he grabbed the breakfast check.

“Well we’ll see,” he said with a smile.

And we’ll all be watching, hoping and praying Matt Szczur’s gift of life saves the life of the little girl.

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Eneas
Eneias Freitas, Painter

Once again someone with a heavy bone marrow connection fell out of the ceiling and into my lap.  I mean this is getting out of hand, but I love it.  Here’s the deal, I was on the phone doing an interview on The Marrow in Me with CNN Radio.  Eneias Freitas, who we hired to paint the interior of our house, was just outside my home office spackling the wall and keeping an ear on the conversation. 

When I hung up the phone he asked, “What do you do?”

“I’m on TV and I wrote a book about being a bone marrow donor,” I told him.

“Really?  I just registered as a potential bone marrow donor too,” he said while pulling his National Marrow Donor Program ID card from his pocket to show me.

I was talking with CNN’s John Lorinc about the critical shortage of minorities on available donor rolls and here’s a guy in my house (Eneias) who knows exactly what I’m talking about and he’s recruiting fellow Brazilians and other minorities to get their cheeks swabbed.  About a hundred or so of his friends and family members registered at a church in Framingham, Massachusetts to support the Icla da Silva Foundation.   

This is kind of the story of my life and so much of what I’ve written about in The Marrow in Me.   Chance people come into my life with stories similar to mine and then we discover our common ground by accident or divine design.

So Enias picks up his phone and dials out, gesticulating wildly while talking in Portuguese.   Turns out he’s talking to his amigo who has a radio show, the largest Brazilian radio show in New England, 650AM WSRO.  Brazil is the fifth most populous country in the world with almost 193-million people.  I need to brush up on my Portuguese, entender?

IMG_2403

And by the way if you need an excellent painter, call Enias at 508-740-5344!
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